Casa Hunter: Viver é Raro – to live is the rarest thing

Brazilian healthcare non-profit Casa Hunter created the Vivir E Raro campaign to raise awareness of and promote research on rare diseases.

According to the World Health Organization (WHO), there are currently 7,000 rare diseases documented worldwide, profoundly affecting the lives of 13 million people in Brazil. While these numbers may appear significant, the reality is distinct. When compared to more prevalent diseases such as cancer and diabetes, conditions like hemophilia and pulmonary arterial hypertension are comparatively less common and often overlooked by society and government. Ignorance stands as one of the primary hurdles in the treatment journey faced by these patients. Therefore, it is crucial to enhance visibility and raise awarenessfor...

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